18 May, 2020
The Supreme Council for Motherhood & Childhood organizes “Hemmah coffee” about “People with Down Syndrome”
The Supreme Council for Motherhood and Childhood, through the Association of Mothers of People of Determination, "Hemmah", organized the initiative presented by the Albayt Mitwahid Association on "Ramadan coffee for them", the day before yesterday "Saturday" in cooperation with the Ministry of Health and Prevention and the Zayed Higher Organization for People of Determination "hemmah coffee" About children with Down syndrome, with the participation of doctors and specialists in dealing with this group, as well as a number of mothers of children born with it and interested members of the public.
This event, which was organized remotely through visual communication techniques, comes within the framework of the Supreme Council for Motherhood & Childhood and the Society's commitment to adhere to the precautionary measures taken by the state to combat the spread of the new Corona virus "COVID-19", in the forefront of which is to maintain the rules of social divergence, and contribute to support the campaign " For your safety .. Stay at home. "
"Hemmah Coffee" presented by the media intreviewer, Hassan Al Marzouqi from Al-Forsan Group, discussed the concept of Down syndrome, its causes, appropriate health methods and methods for dealing with the children they are born with, and the foundations of medical and psychological support and the rules of primary care that contribute to mitigating its effects and repercussions on their lives, as well as directed plans and initiatives To help them make the best investment of their energies, abilities and talents in a way that positively reflects their productivity and their social role and meets their aspirations and the aspirations of the society to which they belong.
Participants in the event raised the highest verses of thanks, appreciation and gratitude to Her Highness Sheikha Fatima Bint Mubarak, Chairwoman of the General Women's Union, Chairwoman of the Supreme Council for Motherhood and Childhood, Supreme Chairwoman of the Family Development Foundation, for the attention she gives to all segments of society, and what Her Highness is showing to provide the best opportunities for the category of people of determination to enable them to integrate into society and perform their role in serving themselves and the country efficiently and in parallel with their healthy peers.
Spoke at the meeting, a specialist with Down Syndrome rehabilitation at the Zayed Higher Organization for People of Determination, Ahmed Abd Rabbo Al Zoghbi explained that prevention of a disorder of Down syndrome was able to avoid the father and mother’s desire to avoid the causes that can lead to infection, the most important of which is reproduction at a late age for the mother, where The rates of infection of the fetus increase after reaching the age of 35 years, which requires it in the case of pregnancy, careful follow-up and certain medical examinations that show the extent of the presence of genetic or genetic predisposition that can lead to the infection of the fetus with the syndrome.
He said that the birth of a child with Down syndrome means that he and his parents must coexist with it, but it is not the end pointing out that there are psychological rehabilitation procedures and programs that help parents and families to accept the child and enable the affected child to live a life that is closer to normal in social terms with the family. Confirming in this context the importance of early detection of the case of infection in the first three months of pregnancy and the psychological rehabilitation of the child and his family by specialists as soon as the case is discovered so that they accept it and are keen to deal with it scientifically and in accordance with the rules and principles followed in such cases this is largely reflected in the success in caring for the child and his rehabilitation and dealing with it according to the best methods followed, by giving the injured child positive psychological motivations upon reaching the age of awareness and interaction with his surroundings.
He added that one of the most important aspects of following up the condition of people with Down syndrome is to carry out the necessary medical examinations immediately after birth with the aim of early detection of the condition and knowing the extent of his suffering from diseases that may be chronic affecting his development, health and safety, and in the forefront of this the condition of the heart and his respiratory system, stressing in this context on the principle Not all children with Down syndrome suffer from severe intellectual disability, but many of them are able to interact, learn and acquire skills and knowledge of all kinds, which is proven by many of the outstanding success cases recorded in the UAE for people of this category who are able to produce and work in various jobs and professions.
For her part, Dr. Anoud Al-Kindy, a pediatrician at the Ministry of Health and Prevention, who talked about the importance of early detection of Down syndrome cases in helping mothers in particular and families in general to deal with their affected children in terms of their health, physical and psychological care and follow-up and take all necessary to qualify them And training them and then integrate them into society, explaining that the early periodic examinations of a pregnant mother give clear indications about whether the fetus has the characteristics of Down syndrome, which helps to qualify it first to deal with the situation by introducing them to all the services and procedures necessary for child care and awareness. Behold, all what is needed after birth and in various stages of age later.
She said that the emergence of symptoms of Down syndrome means that there are cells and organs in the child's body that grow and develop abnormally, which results in an imbalance in many of the vital functions he has. noting that 50% of children with down syndrome suffer from heart and respiratory problems, which means that neglecting or failing to follow up may exacerbate their health problems. Dr. Al-Kindy affirmed that the importance of follow-up and doubling of interest in people with Down syndrome is increasing in light of the current exceptional circumstances in which society lives due to the repercussions of the new Corona virus crisis "Covid-19" because the immune system of their blood usually suffers from weakness resulting from certain imbalances, which makes them vulnerable to more than Others for respiratory diseases, stressing the need to follow-up vaccinations and preventive vaccines prescribed for children, especially from this group, to immunize them and protect them from exposure to diseases and epidemics, calling on parents not to take their children to health centers and hospitals except in the case of necessity and emergency requiring intervention therapeutically directly from doctors and specialists.
Amira Al Qubati, Vice President of the Association of Mothers of People of Determination, "Hemmah", and Saada Al Junaibi, Secretary of the Association, who reviewed their experiences in caring for children of people of determination with Down syndrome, participated in the event, and their distinguished achievements in caring for their children and enabling them to interact effectively with their surroundings and help them achieve many of the accomplishments that positively reflected on their life skills and their abilities to explore their talents and skills and practice them and then a gradual integration into society.
At the end, all participants unanimously agreed on "Hemmah Coffee" and on the importance of providing the appropriate atmosphere that allows people with Down syndrome to discover their tendencies and desires and provide them with full support, especially in light of the current circumstances, by involving them in home activities to avoid exposure to the introverted state resulting from free time and limited external activities, and helping them to practice a role that enhances the level of self-confidence and develops their self and enables them to continue in the earnest pursuit of achieving their goals and aspirations.